The Experience of Living and Working in Small-scale Residential Dementia Care - Case Series (RM Gibson Award 2024)
Robyn Lewis

Date and Time

Wednesday, November 11, 2026, 12:00 PM - 12:15 PM

Theme / Track

Ageing well, longevity and social context

Presentation Format

Concurrent

This study explores the experiences of small-scale dementia care in Australia from the perspectives of people with dementia, family/friends, managers and staff. The study was a mixed-methods case series of six small-scale sites in Australia operated by different organisations. Sites included aged and disability care delivering supported independent living (n=2), co-located with traditional care (n=2) and congregate designs (n=2) in different jurisdictions and locations ranging from levels 1-5 of the Modified Monash Model. Sequential data collection was conducted at each site using three phases: 1) Validated questionnaires measuring quality of life of residents using the Quality of Life – Aged Care Consumers Tool (QOL-ACC) and the Person-Centred Care Assessment Tool (P-CAT); 2) Interviews to capture awareness of the philosophy and implementation of small-scale care; and 3) Experiences of the physical, care, and social environments. At each site, participants were managers (n=2), residents (n=4), family/friends (n=4), and staff (n=4). Staff reported moderate-high levels of person-centred care according to P-CAT. On QOL-ACC, residents reported moderate-good quality of life and family/friends reported poor-good quality of life of their loved one. Preliminary analysis of qualitative data indicates general satisfaction with the model across all cohorts. Financial viability appears to contribute to changes in key aspects of small-scale care such as staffing, activities and community engagement. The findings address a gap in knowledge about small-scale dementia care in Australia. With increased interest in person-centred approaches in aged and disability care, broader research to inform the planning and delivery of dementia care in Australia is urgently needed.

Keywords

Dementia, Human Rights, Innovation, Models of Care, Residential

Authors

Distinguished Professor Diane Gibson, Centre for Ageing Research and Translation, University of Canberra
Professor Stephen Isbel, Centre for Ageing Research and Translation, University of Canberra
Professor Kasia Bail, Centre for Ageing Research and Translation, University of Canberra
Associate Professor Nathan D'Cunha, Centre for Ageing Research and Translation, University of Canberra