"I didn’t want to lie down in case I had to get up again" impacts of incontinence on sleep and wellbeing of Māori whānau living with dementia
Rosemary Gibson

Date and Time

Friday, November 13, 2026, 8:45 AM - 9:00 AM

Theme / Track

Health, medical and integrated care

Presentation Format

Concurrent

Dementia is a prominent health burden affecting 70,000 New Zealanders and 12% of the Indigenous Māori population. Literature regarding dementia and its accompanying issues for Māori are scarce. This study considered the experiences of Māori whānau (families) living with dementia, with a key focus on the impact of incontinence on sleep, wellbeing and care. Extant longitudinal interview data was screened for sleep-related content. These interviews were conducted with 16 pakeke (older Māori) with Matewareware (dementia) and their whānau Manaaki (lead family carers) over a two-year period with a key focus on continence and dementia. Three case studies were selected for the present sleep-related analysis (all pakeke were female and aged between aged 58-80 years, cared for primarily by their daughters). Content concerning sleep and continence were analysed thematically using Te Whare Tapa Whā model of Māori wellbeing as a framework. Findings identified Taha Wairua (spiritual wellbeing) and Taha whānau (family wellbeing) as the most prominent constructs presented by pakeke. For whānau manaaki, the Taha Tinana (physical) and Taha Hinengaro (mental wellbeing) were identified as prominent themes. These will be presented as case studies with illustrative quotes. Although the sample was small, localised and predominantly female, this study offers the first representations of experiences of incontinence and sleep disruptions among Māori living with dementia. Findings provide a foundation for future research considering the unique, often hidden, symptoms of dementia from Indigenous perspectives.

Keywords

Dementia, Informal Caregivers, Minority Groups, Psychology, Wellness / Well Being

Authors

Ashleigh Te Aroha Witehira, Massey University
Dr Deanna Haami, Massey University