Of the 3 million family and friend carers in Australia, 1.2 million (38.6%) are living with a disability, a further 837,000 (27.5%) live with a long-term health condition, double the rate of the general population (ABS 2024). Currently, there is limited research on the intersection of caring while living with a disability, as most existing approaches treat health, disability and carers separately, rather than intersectionally. Data from the National Carer Survey, however, shows that carers of someone using aged care services, who live with a disability or a long-term health condition themselves, have significantly worse health and wellbeing outcomes compared to other carers. Crucially, this group also reports being significantly less included in decision making and less recognised as carers. This indicates that aged care and health services fail to support and include a cohort who have high needs, but also a wealth of expertise in care from their own lived experience. In response to these findings, Carers NSW has conducted further consultations with the aim to build understanding of carers’ experiences and needs, identify gaps and priority advocacy issues and strengthen capability across service systems. To better support this cohort, resources and a Stakeholder Engagement Toolkit are in development to translate these research and consultation findings into clear, accessible guide to better support carers living with a disability. The toolkit will provide plain-language information about carers’ experiences, practical guidance on effective ways to engage carers, prompts to improve awareness and identification, and inclusive practice across systems and services.