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Background: People with dementia who live alone are referred to as a ‘neglected inequality’. In 2025 the AdNet Clinical Quality Registry annual report identified that nearly 30% of people diagnosed with mild cognitive impairment or dementia were living alone. However, health and aged care systems are built upon the premise that people with dementia have a ‘carer’ to help access those systems and provide support at home. People with dementia who live alone are not an identified priority population in the National Dementia Action Plan despite experiencing poorer health and social outcomes. Our study is the first to explore the experiences of older people with dementia who live alone in Australia and of family and professionals who look after them. Methods: Data is being collected using in-depth qualitative interviews with people with dementia who live alone, family supporters and health and aged care professionals. Data will be analysed thematically. Results: Data collection is underway (n=19 interviews completed and approximately 40 planned for completion by August 2026). We will present final themes. Preliminary findings suggest that supports are positive but disjointed, the need to consider of the dignity of risk, crises triggering action, and persisting inequity. Implications: Our study will identify the challenges experienced by people living alone with dementia in Australia who live alone and inform future service improvements.
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